Helping Families Talk Through Serious Illness | Hope for Siblings
When a child’s life is on the line, families can struggle to talk about tender topics. That silence can leave brothers and sisters feeling anxious, lonely, and left out.This Breakthroughs Can’t Wait story shares how University of Maryland School of Nursing research led by Kim Mooney-Doyle, PhD, RN, CPNP-AC, FAAN, is building practical, family-based ways to keep communication open and help siblings feel seen.Research funded by the National Institute of Nursing Research (NINR).#BreakthroughsCantWaitUMB #FamilyFirstCare #WholeFamilyHealth #PediatricPalliativeCare #NursingResearch #UMBresearch #NINR
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- 2:30What if we could identify congenital heart disease in every baby before birth?University of Maryland School of Medicine student Claire Wegner is investigating how congenital heart disease is diagnosed — and how earlier detection could save newborn lives.As a participant in the Program for Research Initiated by Students and Mentors (PRISM), Wegner spent her summer in the Department of Pediatric Cardiology under the mentorship of Alicia Heather Chaves, MD, MAS, where she analyzed data from mothers and infants affected by congenital heart disease.Early diagnosis is critical, Wegner stressed, saying, “It has been shown that infants who are diagnosed prenatally, that they have much better outcomes than those who are diagnosed postnatally.”Learn more at https://www.umaryland.edu/breakthroughs
- 0:42Saving More Babies Before Birth | Breakthroughs Can't Wait“What if we could save more babies by diagnosing congenital heart disease before they’re born?”Medical student Claire Wegner is studying the prenatal course of infants with congenital heart disease to uncover why some conditions are detected early while others are missed.Her findings reveal key differences in maternal demographics that can guide solutions to improve prenatal access and save lives.#BreakthroughsCantWaitUMB #MaternalHealth #PrenatalCare #CongenitalHeartDisease #MedicalResearch #UMBresearch #NINR
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- 1:24Siblings’ “Dual Losses”: How to Keep Families Healthy | Breakthroughs Can't WaitWhen a child is seriously ill, siblings often face “dual losses”: the closeness of a brother or sister—and time with a parent pulled into caregiving and hospital stays.Associate Professor Kim Mooney-Doyle listens to siblings and parents to learn their needs and preferences, then turns that evidence into practical family supports that reduce anxiety, strengthen resilience, and protect whole-family health. Research funded by the National Institute of Nursing Research (NINR).#BreakthroughsCantWaitUMB #FamilyFirstCare #WholeFamilyHealth #PediatricPalliativeCare #NursingResearch #UMBresearch #NINR
- 0:53Helping Families Talk Through Serious Illness | Hope for SiblingsWhen a child’s life is on the line, families can struggle to talk about tender topics. That silence can leave brothers and sisters feeling anxious, lonely, and left out.This Breakthroughs Can’t Wait story shares how University of Maryland School of Nursing research led by Kim Mooney-Doyle, PhD, RN, CPNP-AC, FAAN, is building practical, family-based ways to keep communication open and help siblings feel seen.Research funded by the National Institute of Nursing Research (NINR).#BreakthroughsCantWaitUMB #FamilyFirstCare #WholeFamilyHealth #PediatricPalliativeCare #NursingResearch #UMBresearch #NINR